Immune Deficiency Foundation Holds 2nd Annual
IDF Walk for Primary Immunodeficiency
National nonprofit patient organization’s Walk for Primary Immunodeficiency
Returns to Greater Boston
The Immune Deficiency Foundation (IDF), is pleased to announce that the greater area of Boston will host the 2nd Annual IDF Walk for Primary Immunodeficiency. The 1.2-mile walk will serve as an opportunity to join the immunodeficiency community and raise funds and awareness about primary immunodeficiency diseases. All proceeds benefit IDF.
Primary immunodeficiency diseases, or PI, affect children and adults who are born with an immune system that is either absent or severely compromised, which leads to a greater risk of infections. In most cases, there is a pattern of chronic infections before PI is suspected. There are more than 200 types – some are relatively common and others are quite rare. While there are approximately 250,000 people diagnosed with PI in the U.S., thousands more go undetected. Because PI can lead to serious and debilitating diseases, it is critical to get an early diagnosis and proper medical care.
Who: Immune Deficiency Foundation, the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.
What: A fundraising walk designed to support the thousands of individuals and families living with Primary Immunodeficiency across the U.S. Participants can organize or join a team or register as an individual. Registration is available for walkers and non-walking supporters. All are welcome!
When: Sunday, October 2, 2016
Registration Opens– 9:30 a.m.
Welcome Remarks – 10:45 a.m.
Walk Begins – 11:00 a.m.
Post-walk Ceremony – 12:00 p.m.
Where: Boston Common, Boston, MA
Contact: Full details and registration information are available at: http://events.primaryimmune.org/site/TR/Walk/General?fr_id=1131&pg=entry or call the Immune Deficiency Foundation directly at 800-296-4433.
Sponsors: National and local sponsors include: Shire, Coram Specialty Infusion Services, CSL Behring, Grifols, Horizon Pharma, IgG America, Kedrion United States, Octapharma, Option Care, ADMA Biologics and Soleo Health.
About the Immune Deficiency Foundation
The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. To learn more about IDF, visit www.primaryimmune.org.